News

September 3, 2020September 3, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

News, syndicated

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme ... Read more

September 2, 2020September 2, 2020

CAD in COVID-19 Patients Warrants M. Pneumoniae Test, Report Advises

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The presence of cold agglutinin disease (CAD) without red blood cells’ destruction in patients with COVID-19 should prompt clinicians to test for Mycoplasma pneumoniae, as this type of bacteria ... Read more

August 26, 2020August 26, 2020

Study Supports Use of Rituximab-containing Therapies in CAD

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Therapies that contain Rituximab may be effective for people with cold agglutinin disease (CAD), a study suggests. The study, “Rituximab-containing therapy for cold agglutinin disease: a retrospective study of ... Read more

August 25, 2020August 25, 2020

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

News, syndicated

Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient ... Read more

August 19, 2020August 19, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. ... Read more

August 13, 2020August 13, 2020

New Streaming Channel Showcases Rare Disease Films

News, syndicated

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the ... Read more

August 12, 2020August 12, 2020

2 Cases of CAD in France Linked to COVID-19, Report Suggests

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Coronavirus disease 2019 (COVID-19) could cause cold agglutinin disease (CAD), a case report of two patients from France suggests. The cases were described in a letter to the editor of ... Read more

August 5, 2020August 5, 2020

Blood Cancer Therapy May Be Effective for Difficult-to-treat CAD, Case Study Suggests

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Daratumumab, a therapy used to treat myeloma patients, effectively eased painful and disabling symptoms in a man with cold agglutinin disease (CAD) who failed to respond to rituximab, a ... Read more

July 22, 2020July 22, 2020

Japanese CAD Patients Face Higher Risk of Blood Clots, Study Finds

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Japanese patients with cold agglutinin disease (CAD) are almost three times more likely to develop blood clots compared with people without this autoimmune disorder, a study reports. These findings are ... Read more

July 15, 2020July 15, 2020

COVID-19 Thought To Be Cause of CAD in Woman in Case Report

News

A case report from Michigan suggests that coronavirus disease 2019 (COVID-19) could cause cold agglutinin disease (CAD). Results showed that appropriate treatment, including folic acid and a steroid, lowered inflammation ... Read more

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