News

May 20, 2020May 20, 2020

FDA Gives Priority Review to Sutimlimab for Adults with CAD

News

The U.S. Food and Drug Administration (FDA) is giving priority review to Sanofi’s request that sutimlimab be approved to treat hemolysis in adults with cold agglutinin disease (CAD). The FDA is expected ... Read more

May 19, 2020May 19, 2020

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

News, syndicated

Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual conference, bringing some 1,500 delegates from 57 countries together online during the COVID-19 pandemic. ... Read more

May 13, 2020May 13, 2020

CAD Places ‘Substantial Burden’ on Patients, Healthcare Resources in US, Study Reports

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Commercially insured patients with cold agglutinin disease (CAD) in the U.S. use healthcare resources — hospital admissions, outpatient and emergency room visits, and blood transfusions — more frequently than ... Read more

May 12, 2020May 12, 2020

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

News, syndicated

The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the COVID-19 outbreak is affecting people with rare diseases, their families, and caregivers. ... Read more

May 6, 2020May 6, 2020

Study: Sugar Molecules in Autoantibodies May Help CAD Diagnosis

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The autoantibodies found in people with cold agglutinin disease (CAD) carry high levels of sugar molecules, which may help distinguish them from those with related disorders, a study has ... Read more

April 29, 2020April 29, 2020

Rituximab More Effective in Patients With wAIHA Than CAD, Review Finds

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Treatment with rituximab is safe and effective in managing autoimmune hemolytic anemia (AIHA), and seems to be more beneficial for people with warm antibody autoimmune hemolytic anemia (wAIHA) than ... Read more

April 28, 2020April 28, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

News, syndicated

While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in ... Read more

April 22, 2020April 24, 2020

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

News, syndicated

The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community who are affected by the COVID-19 pandemic in the U.S. ... Read more

April 15, 2020April 15, 2020

Heart Surgery in CAD Patients Can Be Performed Safely with Certain Adjustments, Study Indicates

News

Heart surgery can be performed safely in people with cold agglutinin disease (CAD) by adopting a series of procedure adjustments, according to a case study. The study, “Cardiopulmonary bypass ... Read more

April 8, 2020April 9, 2020

NORD’s Advice on COVID-19: You’re Stronger Than You Think

News, syndicated

First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most ... Read more

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