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November 15, 2019November 16, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

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Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 5, 2019November 5, 2019

Risk of Blood Clots Higher in CAD Patients Than General Population, Study Concludes

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Cold agglutinin disease (CAD) patients have an increased risk of developing blood clots compared to the general population, a retrospective Danish study shows. The findings of the study, “Occurrence, thromboembolic ... Read more

October 29, 2019October 29, 2019

Combo That Includes Hyperbaric Oxygen Treats Nose Ischemia Linked to CAD, Report Says

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Restricted blood flow, or ischemia, in the nose of a cold agglutinin disease (CAD) patient can be successfully treated using a combination that includes aspirin, heparin, nitroglycerin ointment, and hyperbaric ... Read more

October 21, 2019October 21, 2019

Arzerra a Potential Alternative to Rituxan for Patients with AIHA and Lupus, Case Report Suggests

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Arzerra (ofatumumab) may be a promising alternative for the treatment of autoimmune hemolytic anemia (AIHA) in patients who also have systemic lupus erythematosus (SLE) and develop reactions to Rituxan ... Read more

October 7, 2019October 7, 2019

Earlier Meningitis Vaccine Booster May be Necessary for CAD Patients on Anti-complement Therapy, Study Suggests

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To lower the risk of meningitis infection in patients with cold agglutinin disease (CAD) treated with Soliris (eculizumab), a booster given shortly after the first vaccination may be required, ... Read more

September 30, 2019September 30, 2019

Review Looks at AIHA Risk, Treatment Options in Patients After Stem Cell Transplant

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New targeted therapy options are needed for patients who develop autoimmune hemolytic anemia (AIHA) following a stem cell transplant, a review study says. The study, “Management of refractory autoimmune hemolytic ... Read more

September 27, 2019September 27, 2019

NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

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Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, MD, chairman of NORD’s board ... Read more

September 23, 2019September 23, 2019

Study Finds Risk Factors for AIHA Following Stem Cell Transplant

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Immune rejection and half-matched donors are risk factors for developing autoimmune hemolytic anemia (AIHA) following blood cancer-treating stem cell transplants, a study found. Titled “Autoimmune hemolytic anemia after allogeneic ... Read more

September 9, 2019September 9, 2019

Be on Lookout for CAD, Other Conditions That May Affect Cancer Surgery, Physicians Advised

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Physicians should be on the lookout for chronic medical conditions, such as cold agglutinin disease (CAD), that may affect the outcomes of older patients while recovering from cancer extraction ... Read more

September 6, 2019September 6, 2019

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

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Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest. Two entries in November’s “Disorder: ... Read more

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