November 26, 2020November 25, 2020 Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their ... Read more
November 20, 2020November 20, 2020 Manufacturing Deficiencies Delay FDA Decision on Sutimlimab for Adults The U.S. Food and Drug Administration (FDA) has issued a complete response to Sanofi’s application requesting that its investigational therapy sutimlimab be approved for ... Read more
November 18, 2020November 18, 2020 Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and ... Read more
November 13, 2020November 13, 2020 Poor Prognosis for Lymphoma-associated AIHA, Case Report Shows People with non-Hodgkin’s lymphoma (NHL) — a type of blood cancer — that co-occurs with autoimmune hemolytic anemia (AIHA) have a poor prognosis, suggesting ... Read more
November 12, 2020November 12, 2020 Recreational Therapy for Cold Agglutinin Disease Patients Living with a chronic disease such as cold agglutinin disease (CAD) can lead to anxiety, stress, and feelings of isolation. Recreational therapy may work ... Read more
News Apellis, Sobi Partner on Systemic Pegcetacoplan for CAD, Other Rare Diseases November 6, 2020November 6, 2020 Apellis Pharmaceuticals and Swedish Orphan Biovitrum (Sobi) are collaborating to advance the development of ...
Health Insights Side Effects of Rituximab for CAD November 5, 2020November 5, 2020 Cold agglutinin disease (CAD) is an autoimmune disorder where the body attacks its red ...
News, syndicated NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits November 4, 2020November 4, 2020 The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days ...
News, syndicated UK Organization ’Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner October 30, 2020October 27, 2020 A photo of a bespectacled young boy, his red baseball cap slightly askew as ...
News CAD, Other Hemolytic Anemias Increased in Denmark for Past 4 Decades, Study Finds October 23, 2020October 23, 2020 The incidence and prevalence of most acquired hemolytic disorders, including cold agglutinin disease (CAD), have ...
Health Insights Alert Cards for Cold Agglutinin Disease October 22, 2020October 22, 2020 Clinical alert items such as blood lab cards and bedside blood cards are important ...
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say October 21, 2020October 21, 2020 A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience ...
Infant CAD May Be Treated With IV Immunoglobulin, Case Report Suggests October 16, 2020October 19, 2020 The case of an infant who developed cold agglutinin disease (CAD) shortly after being ...
Secondary CAD May Cause Complications in Cases of Severe COVID-19, Report Suggests October 9, 2020October 9, 2020
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos October 7, 2020October 7, 2020
Cancer Treatment With Keytruda May Lead to CAD, Case Report Suggests October 2, 2020October 2, 2020 Treatment with the cancer immunotherapy Keytruda (pembrolizumab) can lead to the development of cold agglutinin ...
CAD Least Common Autoimmune Hemolytic Anemia in India, Study Suggests September 25, 2020September 25, 2020
Fall Uncovers Undiagnosed CAD in Elderly Woman, Case Study Reports September 18, 2020September 18, 2020 Researchers in the U.K. have described the case of an 81-year-old woman who was ...
News CAD Possible in COVID-19 Patients With Blood Clotting Problems, Case Report Finds September 9, 2020September 9, 2020 Physicians should consider testing patients with COVID-19 and thrombosis for different forms of autoimmune ...
News, syndicated Same But Different Photo Contest Celebrates People With Rare Diseases September 3, 2020September 10, 2020 Same but Different, a U.K. nonprofit that uses the arts to bring communities together, ...
News CAD in COVID-19 Patients Warrants M. Pneumoniae Test, Report Advises September 2, 2020September 2, 2020 The presence of cold agglutinin disease (CAD) without red blood cells’ destruction in patients ...
Health Insights Cold Agglutinin Disease in Children August 27, 2020August 27, 2020 While the risk for cold agglutinin disease (CAD) increases after age 55, children occasionally develop ...
News Study Supports Use of Rituximab-containing Therapies in CAD August 26, 2020August 26, 2020 Therapies that contain Rituximab may be effective for people with cold agglutinin disease (CAD), ...
News, syndicated Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input August 25, 2020August 25, 2020 Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, ...
News, syndicated EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US August 19, 2020August 19, 2020 The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. ...
News, syndicated New Streaming Channel Showcases Rare Disease Films August 13, 2020August 13, 2020 When the COVID-19 pandemic forced the postponement of a rare disease film festival originally ...
News 2 Cases of CAD in France Linked to COVID-19, Report Suggests August 12, 2020August 12, 2020 Coronavirus disease 2019 (COVID-19) could cause cold agglutinin disease (CAD), a case report of two ...
