March 5, 2021March 5, 2021 Infant, Secondary AIHA Treatment Challenging, Indian Study Shows An examination of medical records of Indian children with autoimmune hemolytic anemia (AIHA), a group of disorders that includes cold agglutinin disease, found managing infants ... Read more
March 4, 2021March 4, 2021 Talking to Your Employer About Cold Agglutinin Disease If you have cold agglutinin disease (CAD) and are working, you may be wondering how best to speak with your employer about your condition, or ... Read more
February 26, 2021February 26, 2021 Lower C3, C4 Complement Proteins Levels Found in CAD Patients People with cold agglutinin disease (CAD) have significantly lower blood levels of C3 and C4 — two key molecules of the body’s innate complement immune ... Read more
February 25, 2021February 25, 2021 Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a ... Read more
February 25, 2021February 25, 2021 Sleep Hygiene for CAD A good night’s sleep is essential to your physical and mental health, as well as your quality of life. Everyone can benefit from good sleep ... Read more
News, syndicated Rare Disease Day at NIH, Set for March 1, Growing Year by Year February 23, 2021February 23, 2021 Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place ...
News Modified Red Blood Cells May Be Better to Resolve Anemia in AIHA February 19, 2021February 19, 2021 Modified red blood cell products may be better at counteracting anemia than red blood cell ...
News, syndicated Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients February 18, 2021February 18, 2021 People with rare disorders have a worse healthcare experience than those affected by chronic diseases, ...
Health Insights About Shoshin and How It May Help CAD Patients February 18, 2021February 18, 2021 If you have a chronic condition such as cold agglutinin disease (CAD), a Japanese concept ...
News Antibody Modification May Drive Antibody-linked Diseases Like CAD February 12, 2021February 12, 2021 A type of protein modification called glycosylation is associated with higher levels of disease-causing antibodies ...
News, syndicated Pandemic Won’t Stop Rare Disease Day on Feb. 28 February 11, 2021February 11, 2021 Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 ...
Cold Agglutinin Disease and Advocacy February 11, 2021February 11, 2021 If you or a family member has cold agglutinin disease (CAD), you may be interested ...
Bladder Cancer Linked to CAD in Rare Case February 5, 2021February 19, 2021 Researchers have reported a very rare case of cold agglutinin disease (CAD) associated with urothelial carcinoma, the ...
COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say January 27, 2021January 27, 2021 The two COVID-19 vaccines that recently received emergency approval from the U.S. and other worldwide ...
CAD in COVID-19 Patients May Lead to Blood Typing Abnormalities January 15, 2021January 15, 2021 COVID-19 can be associated with the development of cold agglutinin disease (CAD), leading to the ...
NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum January 12, 2021January 11, 2021
News 4 Warming Methods Combined to Prevent Hypothermia During Surgery January 8, 2021January 8, 2021 Using multiple warming measures, hypothermia was prevented in an adult man with severe cold agglutinin ...
Health Insights The CADENCE Registry January 7, 2021January 7, 2021 To advance understanding of cold agglutinin disease (CAD) and better support patients globally, Sanofi Genzyme has launched ...
News Off-label Imbruvica Helped Ease CAD Symptoms, Preliminary Study Shows December 18, 2020December 18, 2020 Off-label treatment with Imbruvica (ibrutinib), a lymphoma and leukemia therapy, can reduce the anemia and ...
Health Insights Summary of CAD Medications December 17, 2020December 17, 2020 Avoiding cold conditions, dressing appropriately for the cold, or living in warm climates is often ...
News Sutimlimab Reduces CAD Hospitalizations, Blood Transfusions, Analysis Finds December 11, 2020December 11, 2020 Use of the investigational therapy sutimlimab results in substantial reductions in patient hospitalizations and blood ...
Health Insights CAD and Anesthesia December 10, 2020December 10, 2020 For cold agglutinin disease (CAD) patients who may need to undergo surgery, certain complications can ...
News CAD Widely Affects Daily Life, Raises Risk of Mental Illness, Research Shows December 4, 2020December 4, 2020 Cold agglutinin disease (CAD) disease negatively affects a variety of aspects of daily living, with ...
News, syndicated NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting December 3, 2020December 3, 2020 To empower and equip members of the rare disease community to engage state leaders in ...
Health Insights Warm Heart Surgery for Cold Agglutinin Disease December 3, 2020December 3, 2020 People with cold agglutinin disease (CAD) who need heart surgery may find that it poses ...
