April 16, 2021April 16, 2021 COVID-19 Triggered CAD, Muscle Inflammation in Leukemia Patient, Report Says A woman developed cold agglutinin disease (CAD) and myositis (muscle inflammation) as a complication of COVID-19, underscoring the importance of a timely, comprehensive evaluation to ... Read more
April 16, 2021April 15, 2021 EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through ... Read more
April 9, 2021April 12, 2021 New Trial Data Show ‘Promising’ Sustained Sutimlimab Effects Sanofi’s investigational therapy sutimlimab safely and rapidly prevents red blood cell destruction (hemolysis), increases hemoglobin levels, and reduces fatigue in adults with primary cold agglutinin ... Read more
April 2, 2021April 2, 2021 Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how ... Read more
March 26, 2021March 26, 2021 Daratumumab Found to Ease Anemia, Circulatory Symptoms in CAD Patient Daratumumab eased circulatory symptoms and anemia without causing adverse side effects in a 59-year-old man with cold agglutinin disease (CAD), a recent medical case study ... Read more
News Case Report Highlights Possible CAD, COVID-19 Link March 19, 2021March 19, 2021 The case of a man with COVID-19 who temporarily developed elevated levels of cold agglutinins ...
News AIHA Patients at Greater Risk of Thrombotic Events, Report Advises March 12, 2021March 12, 2021 Physicians should be aware that patients with autoimmune hemolytic anemia (AIHA) are at greater risk ...
Health Insights Respite Care for CAD Caregivers March 11, 2021March 11, 2021 Providing constant care to a patient living with a chronic disorder such as cold agglutinin ...
News, syndicated Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day March 8, 2021March 7, 2021 Many diseases have their own awareness color — breast cancer is pink, muscular dystrophy is ...
News Infant, Secondary AIHA Treatment Challenging, Indian Study Shows March 5, 2021March 5, 2021 An examination of medical records of Indian children with autoimmune hemolytic anemia (AIHA), a group ...
Health Insights Talking to Your Employer About Cold Agglutinin Disease March 4, 2021March 4, 2021 If you have cold agglutinin disease (CAD) and are working, you may be wondering how ...
Lower C3, C4 Complement Proteins Levels Found in CAD Patients February 26, 2021February 26, 2021 People with cold agglutinin disease (CAD) have significantly lower blood levels of C3 and C4 ...
Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion February 25, 2021February 25, 2021 Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of ...
Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients February 18, 2021February 18, 2021
About Shoshin and How It May Help CAD Patients February 18, 2021February 18, 2021 If you have a chronic condition such as cold agglutinin disease (CAD), a Japanese concept ...
Bladder Cancer Linked to CAD in Rare Case February 5, 2021February 19, 2021 Researchers have reported a very rare case of cold agglutinin disease (CAD) associated with urothelial carcinoma, the ...
News Rwandan Study Finds CAD Plays Small Role in Malaria-Related Anemia January 29, 2021January 29, 2021 Cold agglutinin disease (CAD) seems to play a small part in the development of anemia ...
FAQs FAQs About Plasmapheresis for CAD January 28, 2021January 28, 2021 Cold agglutinin disease (CAD) is a rare disorder in which the immune system produces autoantibodies ...
News, syndicated COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say January 27, 2021January 27, 2021 The two COVID-19 vaccines that recently received emergency approval from the U.S. and other worldwide ...
News New Data Highlight Unmet Needs Over Time of Primary CAD Patients January 22, 2021January 22, 2021 The burden of disease among people with primary cold agglutinin disease (CAD) remains high multiple ...
Health Insights Emotional Responses to CAD Diagnosis January 21, 2021January 21, 2021 After receiving a diagnosis of cold agglutinin disease (CAD), you may experience emotions that range ...
News, syndicated NORD’s Caregiver Respite Program Continues Through Pandemic January 20, 2021January 20, 2021 Caring for a loved one with a rare disease, especially during these uncertain times, demands ...
News CAD in COVID-19 Patients May Lead to Blood Typing Abnormalities January 15, 2021January 15, 2021 COVID-19 can be associated with the development of cold agglutinin disease (CAD), leading to the ...
Health Insights Your CAD Treatment Team January 14, 2021January 14, 2021 If you are diagnosed with cold agglutinin disease (CAD), it is important to see a ...
News, syndicated NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum January 12, 2021January 11, 2021 The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences ...
