Updates

May 29, 2020May 29, 2020
COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for new biotech startups, it has begun to cause delays ... Read more
May 27, 2020May 27, 2020
Blood Clot Risk with CAD Almost Twice That of Other Patients

The risk of blood clots nearly doubles in people with cold agglutinin disease (CAD) compared with that seen in patients with other conditions, a ... Read more
May 27, 2020May 28, 2020
How to Deal With Raynaud’s Phenomenon When You Have Cold Agglutinin Disease

Cold agglutinin disease (CAD) is a rare autoimmune disease in which the immune system makes antibodies that mistakenly attack red blood cells in cold ... Read more
May 25, 2020May 25, 2020
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 ... Read more
May 20, 2020May 20, 2020
FDA Gives Priority Review to Sutimlimab for Adults with CAD

The U.S. Food and Drug Administration (FDA) is giving priority review to Sanofi’s request that sutimlimab be approved to treat hemolysis in adults with cold agglutinin disease ... Read more

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Updates

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Blood Clot Risk with CAD Almost Twice That of Other Patients

How to Deal With Raynaud’s Phenomenon When You Have Cold Agglutinin Disease

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

FDA Gives Priority Review to Sutimlimab for Adults with CAD

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Cold Agglutinin Disease Clinical Trials

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

CAD Places ‘Substantial Burden’ on Patients, Healthcare Resources in US, Study Reports

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Heart Surgery in Cold Agglutinin Disease

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Study: Sugar Molecules in Autoantibodies May Help CAD Diagnosis

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Tips for Your Daily Routine When You Have Cold Agglutinin Disease

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Rituximab More Effective in Patients With wAIHA Than CAD, Review Finds

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Cold Agglutinin Disease and Pregnancy: Am I at Risk?

Heart Surgery in CAD Patients Can Be Performed Safely with Certain Adjustments, Study Indicates

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Will I Pass Cold Agglutinin Disease to My Children?

CAD May Be Related to Marginal Zone Lymphoma, Study Says

Mindfulness for People With Cold Agglutinin Disease

NORD Partners with ‘Sing Me a Story’ for July 18-20 Living Rare Forum

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Sutimlimab Safe, Effective as Long-term Therapy for CAD, Study Finds

CAD Can Lead to Serious Complications During Pregnancy, Case Study Says

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

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COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Blood Clot Risk with CAD Almost Twice That of Other Patients

How to Deal With Raynaud’s Phenomenon When You Have Cold Agglutinin Disease

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

FDA Gives Priority Review to Sutimlimab for Adults with CAD

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Cold Agglutinin Disease Clinical Trials

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

CAD Places ‘Substantial Burden’ on Patients, Healthcare Resources in US, Study Reports

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Heart Surgery in Cold Agglutinin Disease

Subscribe to our mailing list

Study: Sugar Molecules in Autoantibodies May Help CAD Diagnosis

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Tips for Your Daily Routine When You Have Cold Agglutinin Disease

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Rituximab More Effective in Patients With wAIHA Than CAD, Review Finds

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Cold Agglutinin Disease and Pregnancy: Am I at Risk?

Heart Surgery in CAD Patients Can Be Performed Safely with Certain Adjustments, Study Indicates

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Will I Pass Cold Agglutinin Disease to My Children?

CAD May Be Related to Marginal Zone Lymphoma, Study Says

Mindfulness for People With Cold Agglutinin Disease

NORD Partners with ‘Sing Me a Story’ for July 18-20 Living Rare Forum

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Sutimlimab Safe, Effective as Long-term Therapy for CAD, Study Finds

Building Emotional Resilience When You Have Cold Agglutinin Disease

CAD Can Lead to Serious Complications During Pregnancy, Case Study Says

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

Pin It on Pinterest