Exploring the Jungle - a Column by Mary Lott

What they’re saying in an online support group of CAD patients

In May 2018, I entered the unknown “jungle” of a cold agglutinin disease (CAD), accompanied by what my doctor calls chronic lymphocytic lymphoma. CAD is a rare disease, and in April 2018, I had no understanding of it. Sadly, most people, including some in the medical profession, also…

4 ways I tended to my health while seeking a diagnosis

I carefully pulled myself out of the sunken bathtub and waited a moment before swinging around to stand up. I gripped the sink next to me, pulled up, and caught my breath. “Whoa!” I thought to myself. “That tired me out. Good thing I don’t have to be at work…

4 common questions often asked of those of us living with CAD

A student was waiting at my desk as I walked into the classroom. I smiled as I dropped my books on the desk and looked at her expectantly. She’d been absent the previous day. “Mrs. Lott, did we do anything while I was gone?” That was a stupid question. My…

Outdoor survival skills help me evaluate CAD symptoms

I looked to the right and then to the left, searching in vain for landmarks. I had no clue where we were in the water. I was leading a group of divers and had just committed a gross and dangerous error: I had gotten us lost! We swam on the…

Why I question if Enjaymo is right for me

Note: This column describes the author’s own thoughts about Enjaymo (sutimlimab-jome) and experiences with Rituxan (rituximab). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Yay! Happy days to come! Such was the reaction of many in the…