Exploring the Jungle - a Column by Mary Lott

A CAD patient’s compendium and Christmas wish list

“Wake up! It’s Christmas morning!” I shook my sister awake and we made our way to the stairs. “Are Mom and Dad up yet?” My sister signaled no and we sat down to wait for their arrival, and for our brothers to join us. We were under strict orders to…

A pooch named Pokey brings peace to this CAD patient

“Pokey, I’m back!” I called out as I returned from shopping. I staggered backward as Pokey assaulted me — slurp! slurp! slurp! — in an effort to jump on my shoulder and lick my face. Placing my shopping bags on the nearest table, I accompany Pokey to the couch and…

What it’s like to travel around the world for CAD treatment

“But I’m leavin’ on a jet plane/ Don’t know when I’ll be back again.” — John Denver That song was running through my mind the other day. “Zip!” I jimmied open the zipper of my carry-on to throw in my essentials for the next several days. It was time to…

What they’re saying in an online support group of CAD patients

In May 2018, I entered the unknown “jungle” of a cold agglutinin disease (CAD), accompanied by what my doctor calls chronic lymphocytic lymphoma. CAD is a rare disease, and in April 2018, I had no understanding of it. Sadly, most people, including some in the medical profession, also…

4 ways I tended to my health while seeking a diagnosis

I carefully pulled myself out of the sunken bathtub and waited a moment before swinging around to stand up. I gripped the sink next to me, pulled up, and caught my breath. “Whoa!” I thought to myself. “That tired me out. Good thing I don’t have to be at work…