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The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. Yet even with its enormous resources, the FDA these days relies more and more on patients to…

The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan in Amsterdam’s suburban Zuidas business district, finally opened for business last month — just over two years after the European Union decided to relocate the EMA to the Netherlands in the wake of Brexit.

Physicians have described the rare case of a woman with cold agglutinin disease (CAD) associated with advanced breast cancer. Her case was described in a case report study, “Cold autoimmune hemolytic anemia: a rare association with triple-positive breast cancer,” published in the Journal of…

The wrong blood type may be given to people with undiagnosed autoimmune hemolytic anemia (AIHA), which can lead to them receiving blood transfusions from mismatched blood donors, a case report shows. This research highlights the need for rigorous lab work to determine and confirm blood type before blood…

Autoimmune hemolytic anemia (AIHA) can be a cause for anemia in people with chronic myeloid leukemia (CML), a case report found. The study “Autoimmune Hemolytic Anemia After Relapse of Chronic Myeloid Leukemia: A Case Report” was published in the journal Clinical Medicine Insights: Blood Disorders. AIHA, an autoimmune…

Treatment with blood transfusions is safe and efficient for treating hospitalized autoimmune hemolytic anemia (AIHA) patients, a large observational study suggests.   This conclusion held true even when using incompatible donors and even for the one-third of patients who developed severe anemia during hospitalization, according to the study.

T follicular helper cells, a subset of T-cells that help other immune cells produce antibodies, seem to play a role in the development of autoimmune hemolytic anemia (AIHA), a mouse study suggests. The study, “The Role of T Follicular Helper Cells and T Follicular Regulatory Cells in…

The Cold Agglutinin Disease Foundation is among 20 rare disease organizations receiving funding under Global Genes‘ 2020 RARE Patient Impact Grant Program. Now in its fifth year, the 2020 grant program is awarding funds totaling almost $200,000 to these organizations. The program provides funding for rare disease patient…

Patients with autoimmune hemolytic anemia (AIHA) who undergo spleen removal surgery have a higher risk of blood clots than patients who did not have the surgery, a recent study suggests. The study, titled “Splenectomy and the incidence of venous thromboembolism and sepsis in patients with autoimmune hemolytic anemia,”…

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s highest-ranking health official said. “We have to think about how our financing system can protect those with serious and rare illnesses.