News

Video: Bionews’ Social Media Campaign Highlights #WhatMakesMeRare

In recognition of Rare Disease Day Feb. 29, Bionews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the #WhatMakesMeRare campaign was aimed at uplifting people with rare diseases by encouraging them to share their stories and perspectives. The…

AIHA Found Linked to Hepatitis E Infection in Rare Case Study

The rare case of a man infected with the hepatitis E virus who developed autoimmune hemolytic anemia was described in a study that also highlighted the potential for underdiagnosing autoimmune complications in such infections. The study, “Unusual Presentation of Hepatitis E with Autoimmune Hemolytic Anemia – A Case Report,”…

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

Experts Share Guidelines for Diagnosis, Treatment of CAD, Other Autoimmune Hemolytic Anemias

Autoimmune hemolytic anemia (AIHA) experts gathered in Vienna, Austria, in November 2017 for the First International Consensus Meeting with the goal of summarizing current research into diagnosis and treatment of the rare genetic disorders. Now, after three subsequent meetings at medical conferences, the researchers and physicians have published their conclusions and…