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Trying to help is challenging for this CAD patient

It was a rather inauspicious start to a visit. I arrived after midnight one night and my daughter Gail didn’t allow the kids to wake me up the next morning. So, after gaining consciousness and orienting myself to my surroundings, I moved out of the basement bedroom and went upstairs…

What I do when I have trouble falling asleep

I gave up with a sigh. Yet again, I’d spent over half an hour lying in bed, hoping to beckon Hypnos, the Greek god of sleep. His absence was exasperating. Once again, I started my get-to-sleep method. I can’t completely blame my insomnia spells on cold agglutinin disease (CAD).

A positive demeanor makes a big difference to this CAD patient

“Are you OK?” The young woman’s anxious query affirmed to me that I was’t imagining things. I’d just stood up from the wheelchair and entered the women’s bathroom at the airport. “Yes, I’m fine.” “I was concerned. Your attendant wasn’t …” She paused as she searched for a good description.

How CAD will affect this year’s Fourth of July celebration

Boom! Splash! The night sky exploded with a blossom of color showering down overhead. I am remembering a past fireworks display. Talking ceased as we all gazed upward. Then, almost in unison, the crowd said, “Ah!” followed by, “Oh,” as the next explosion shimmered downward. For the next 20 minutes,…

How I practice patience and anticipation with CAD

I slumped into the wheelchair waiting for me outside the airplane door. It had been a long 36-hour trip. I was able to catnap in my economy seats, but my exhausted body was looking forward to getting home and becoming fully horizontal. Then my phone buzzed. The notice said my…

Growing old is challenging for a CAD patient and her motorcycle

“Mom! Can I ride your motorcycle around the backyard?” The backyard was fenced. That was important, as there was a steep drop-off to the valley below just beyond. There were few obstacles, so she could mostly go straight but would also be able to practice turning and navigating difficult terrain.