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Christmas meditations bring me peace amid CAD turmoil

One candle in our Advent wreath is lit before our family’s devotion service begins. Together we sing, “O come, o come, Emmanuel, and ransom captive Israel.” This hymn causes us to remember God’s work and to anticipate God’s kingdom of the future, when we believe the world will be complete.

Living with cold agglutinin disease is like riding a merry-go-round

I heard the music of the calliope before I saw the magical kaleidoscope of colors. Fairs always have their smells: cotton candy, hot dogs, and hamburgers. But my 7-year-old self was enchanted by the merry-go-round. Soon the gaily-colored wooden horses were going up and down as we were twirled around…

For CAD patients, finding joy in life’s journey is fundamental

It was totally dark, and I couldn’t remember where I was. I was nice and comfortable in this soft bed with its squishy pillows. I blinked my eyes and remembered: I was traveling back to the U.S. to see my dermatologist. I was in the Ambassador Hotel at Singapore’s Changi…

How my CAD diagnosis seemed like a natural disaster to me

“It rained and it rained and it rained.” That’s the beginning of the ninth chapter of A.A. Milne’s “The House at Pooh Corner.” Piglet tells himself that he’d never seen so much rain in his life. I felt a lot like Piglet when I went home in Sentani, Papua, Indonesia,…

When the cold agglutinin patient becomes the primary caregiver

Waking groggily, the patient stretched his arm out from under the covers. Hitting the “stop” button on his phone, he groaned. It was time to eat and take his next dose of anti-nausea medicine. After giving it 20 minutes to start working, he took his malaria medicine. To get the…

Grounding myself helps me in recovering from a panic attack

My breath was short and quick. Pokey, my dog, jumped up on the bed and licked my face. It didn’t help. Thoughts continued to swirl through my brain, not settling down into one focus. I was developing a panic attack. Focusing my gaze on one spot on the far wall,…

Contingency plans are essential for both CAD and the tropics

My husband and I went through our checklist. “Do you have a week’s supply of your inhaler?” We try to keep supplies on hand, just in case. We have contingency plans for disasters, such as an earthquake. We’re ready to shelter in place or “bug out,” depending on the circumstances.

A day in the life of a cold agglutinin disease patient

Pokey was nudging my hand, forcing me into consciousness. He was rolling his eyes, dancing around, and almost crossing his legs. “Get up, Mom! I have to go out.” Pokey is my dog. I wish he understood that on Saturdays humans don’t have to get up as early as on…