Exploring the Jungle - a Column by Mary Lott

What they’re saying in an online support group of CAD patients

In May 2018, I entered the unknown “jungle” of a cold agglutinin disease (CAD), accompanied by what my doctor calls chronic lymphocytic lymphoma. CAD is a rare disease, and in April 2018, I had no understanding of it. Sadly, most people, including some in the medical profession, also…

4 ways I tended to my health while seeking a diagnosis

I carefully pulled myself out of the sunken bathtub and waited a moment before swinging around to stand up. I gripped the sink next to me, pulled up, and caught my breath. “Whoa!” I thought to myself. “That tired me out. Good thing I don’t have to be at work…

4 common questions often asked of those of us living with CAD

A student was waiting at my desk as I walked into the classroom. I smiled as I dropped my books on the desk and looked at her expectantly. She’d been absent the previous day. “Mrs. Lott, did we do anything while I was gone?” That was a stupid question. My…

Outdoor survival skills help me evaluate CAD symptoms

I looked to the right and then to the left, searching in vain for landmarks. I had no clue where we were in the water. I was leading a group of divers and had just committed a gross and dangerous error: I had gotten us lost! We swam on the…

Why I question if Enjaymo is right for me

Note: This column describes the author’s own thoughts about Enjaymo (sutimlimab-jome) and experiences with Rituxan (rituximab). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Yay! Happy days to come! Such was the reaction of many in the…

Should I stay or should I go now (to the doctor)?

It didn’t surprise anyone that on Dec. 11, 2019, I was attending another school band concert, given that my husband, Mike, is the band director. But this particular concert was memorable not because of the music, but for the familiar burning tickle in the back of my throat. It presaged…