Exploring the Jungle - a Column by Mary Lott

CAD patients find breathing a bother when enduring a cold

It is a truth universally acknowledged that people with cold agglutinin disease (CAD) can’t breathe. However little known the feelings or views of such a person, this truth is so well-fixed in the minds of the surrounding families, that people with CAD, because they can’t breathe, will never walk…

Misunderstandings are common when trying to explain CAD

The Norfolk pine was well over 6 feet tall. It was top-heavy and too big for the pot. I didn’t have the energy or strength to deal with it. Thankfully, we’d hired a young man, Gari, to work as our gardener as he went to school. Gari’s mother tongue was…

Christmas meditations bring me peace amid CAD turmoil

One candle in our Advent wreath is lit before our family’s devotion service begins. Together we sing, “O come, o come, Emmanuel, and ransom captive Israel.” This hymn causes us to remember God’s work and to anticipate God’s kingdom of the future, when we believe the world will be complete.

Living with cold agglutinin disease is like riding a merry-go-round

I heard the music of the calliope before I saw the magical kaleidoscope of colors. Fairs always have their smells: cotton candy, hot dogs, and hamburgers. But my 7-year-old self was enchanted by the merry-go-round. Soon the gaily-colored wooden horses were going up and down as we were twirled around…

For CAD patients, finding joy in life’s journey is fundamental

It was totally dark, and I couldn’t remember where I was. I was nice and comfortable in this soft bed with its squishy pillows. I blinked my eyes and remembered: I was traveling back to the U.S. to see my dermatologist. I was in the Ambassador Hotel at Singapore’s Changi…

How my CAD diagnosis seemed like a natural disaster to me

“It rained and it rained and it rained.” That’s the beginning of the ninth chapter of A.A. Milne’s “The House at Pooh Corner.” Piglet tells himself that he’d never seen so much rain in his life. I felt a lot like Piglet when I went home in Sentani, Papua, Indonesia,…

When the cold agglutinin patient becomes the primary caregiver

Waking groggily, the patient stretched his arm out from under the covers. Hitting the “stop” button on his phone, he groaned. It was time to eat and take his next dose of anti-nausea medicine. After giving it 20 minutes to start working, he took his malaria medicine. To get the…

Grounding myself helps me in recovering from a panic attack

My breath was short and quick. Pokey, my dog, jumped up on the bed and licked my face. It didn’t help. Thoughts continued to swirl through my brain, not settling down into one focus. I was developing a panic attack. Focusing my gaze on one spot on the far wall,…