Importance of Support Networks for People With Cold Agglutinin Disease

Importance of Support Networks for People With Cold Agglutinin Disease
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Finding out that you have a rare and chronic disorder such as cold agglutinin disease (CAD) can be isolating, and you may feel like no one else understands what you’re going through. It’s not uncommon for people affected by chronic illness to struggle with stress and depression.

If you are depressed or just need to connect with others, a good support network can help.

What is a support network?

Support networks are made up of people who encourage you. These are the people you call when you have good news to share, or when you need help.

These networks can be made up of friends, coworkers, and family members, or be more formal as part of a support group or religious or professional organization.

How can a support network help?

Research has shown that having a good support network helps alleviate stress and emotional turmoil. There are even physical benefits to having a good support network, such as improved cardiovascular health.

Where can I find a support group?

Our website, Cold Agglutinin Disease News, is a great place to start. We regularly publish articles about new research in the field and potential treatments being developed.

It can be difficult to find a support network when you’re in the midst of a personal crisis. If you need help immediately and don’t have the time to build a social support network, a more formal support group may be the best place to start. Talk to your physician or care team about counseling and support groups in your area.

The following organizations offer information about treatment options and ongoing research, but also have networks that allow you to connect with others:

 

Last updated: Feb. 18, 2020

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Cold Agglutinin Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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