Columns

What it’s like living with an autoimmune disease like CAD

“Let’s see what the fam is doing today,” I mused to myself as I opened my Facebook feed. On Facebook, I’ve been able to reconnect with acquaintances from elementary school. My own family is scattered across the world, and I often don’t know where my son is working. Social media…

How CAD affected my skin cancer surgery and healing

Standing at the bathroom mirror, I peer this way and that. Has that scab become smaller? Is there any redness or pain? Any swelling, especially around the edges of my skin graft? Everything seems to be going smoothly. I’m pleasantly surprised. I had my Mohs surgery (for skin cancer…

How a cold climate causes calamities for this CAD patient

I was enveloped in a deliciously warm environment, floating as if on a cloud, bathed in warm sunshine. I stretched out my arm, which immediately whapped against the bedroom wall. My luxurious sleep had ended. I reached down and lifted up my laptop from the bottom shelf of my bedside…

CAD patients find breathing a bother when enduring a cold

It is a truth universally acknowledged that people with cold agglutinin disease (CAD) can’t breathe. However little known the feelings or views of such a person, this truth is so well-fixed in the minds of the surrounding families, that people with CAD, because they can’t breathe, will never walk…

Misunderstandings are common when trying to explain CAD

The Norfolk pine was well over 6 feet tall. It was top-heavy and too big for the pot. I didn’t have the energy or strength to deal with it. Thankfully, we’d hired a young man, Gari, to work as our gardener as he went to school. Gari’s mother tongue was…

Christmas meditations bring me peace amid CAD turmoil

One candle in our Advent wreath is lit before our family’s devotion service begins. Together we sing, “O come, o come, Emmanuel, and ransom captive Israel.” This hymn causes us to remember God’s work and to anticipate God’s kingdom of the future, when we believe the world will be complete.

Living with cold agglutinin disease is like riding a merry-go-round

I heard the music of the calliope before I saw the magical kaleidoscope of colors. Fairs always have their smells: cotton candy, hot dogs, and hamburgers. But my 7-year-old self was enchanted by the merry-go-round. Soon the gaily-colored wooden horses were going up and down as we were twirled around…

For CAD patients, finding joy in life’s journey is fundamental

It was totally dark, and I couldn’t remember where I was. I was nice and comfortable in this soft bed with its squishy pillows. I blinked my eyes and remembered: I was traveling back to the U.S. to see my dermatologist. I was in the Ambassador Hotel at Singapore’s Changi…