The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
Articles by Mary Chapman
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
Providing constant care to a patient living with a chronic disorder such as cold agglutinin disease (CAD) can be…
If you have cold agglutinin disease (CAD) and are working, you may be wondering how best to speak with…
A good night’s sleep is essential to your physical and mental health, as well as your quality of life.
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…
If you have a chronic condition such as cold agglutinin disease (CAD), a Japanese concept called shoshin could help…
Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…